Wednesday, October 6, 2010

The thing about Tourette Syndrome...

is that most people don't realize how challenging it can be...

We've had a long period of being somewhat tic free but now find ourselves in the midst of another round. Whether it was just 'time' or he's feeling some kind of stress (most likely), it's hard to say but it's difficult for Mr. Monkey.

The tics, depending on their nature, impact the ability to get to sleep, they are relentless. Many times the repetitive nature of the tic hurts the part of the body it focuses on and exhausts the child due to its constant appearance. The tic he has now impacts his stomach and breathing as the diaphragm is pushed in and out with the motion of the tic.

His frustrations are high when he is quiet with himself as that is when he notices them the most. Most people miss them, when he's busy they disappear for a time, always to return.

I won't say I feel sad for him as there's nothing to be sad about. I would say I feel helpless... Not being able to calm the tics when he needs sleep or settle them down when he's feeling the normal stresses we all face from time to time.

We talk to him a lot about where he places his focus and the futility of negative feelings about it. I hope that for all our talk he still loves himself at the end of the day, tics and all.

No comments:

Post a Comment